Patients or the public were not involved in the design, conduct, or reporting, of our protocol. We would like to highlight the following factors with respect to data collection, processing, preserving, sharing and usage:
Informed Consent
Volunteers and data providers are fully informed about the project’s objectives, the nature of the data being used, and the context in which their contributions will be applied. This process ensures transparency and allows participants to make informed decisions regarding their involvement.
Data Anonymization
To safeguard personal and sensitive information, the WISEST project employs data anonymization techniques. This process involves removing or encrypting identifiers that can link data to individual contributors or subjects within the SRs, thereby protecting privacy while allowing valuable insights to be derived from the data.
Secure Data Storage and Processing
The project adopts stringent measures for data storage and processing to prevent unauthorized access and ensure data integrity. This includes using secure servers, encrypted communication channels, and access controls that restrict data access to authorized personnel only.
Ethical Use of Data
The WISEST project is committed to using the systematic data ethically, meaning that the data will not be used in ways that could harm individuals, groups, or communities represented in the SRs. The project team regularly reviews its data usage policies to align with ethical guidelines and legal requirements.
Transparency and Accountability
The project maintains a high level of transparency regarding its data use practices. It provides regular updates and reports on how data is being used, the findings from the research, and any implications for policy or practice. This transparency fosters trust among participants, collaborators, and the broader research community.